My husband has left for a business trip and I must admit I miss him incredibly. My mother is still here with me, working diligently along side me to organize a house which had been left in terrible disarray ever since dialysis began. We've been working day and night, stopping only to take trips to the park with the boys and to cook/eat/sleep.
In looking at the state of the house now, I realize how very much dialysis was taking its toll. It was all I could do to take care of Max and Rowan and to work 20 hours a week. Everything else was falling into a steady decline.
We always felt as if the elusive transplant was the key to our future and I felt bad about that. But the truth is, we were right. Life has changed in innumerable ways. Although caring for Max is still quite intense at the present time, the load will lighten significantly over time. It is already lightening....
I know I promised that I would update in a regular manner and I will soon. My mother leaves on Tuesday and my time to myself will be my own...
Hang in there...